Wednesday, April 28, 2010

Robby Report

Wow...here is a Robby Report that I never saw coming. It doesn't fall in the category of "first words, new skills, or cute little things he does," but it is definitely worth a report of it's own.

On Friday, April 23, Robby was diagnosed with Type 1 diabetes (that means he will be insulin dependent for life). Since then, our world has been turned upside down in an almost manageable way, but I'll share more about that later. I first want to tell the series of events that lead us up to this point.

This has indeed been a trial for our family (and will continue to be), but as with most difficult times, there can be found mighty miracles. Our first miracle came in the form of a visit. Several months ago, my parents told us they wanted to come visit. We proposed a few dates, but my parents told us none of them would work. They then told us the exact week they could come (which dates also allowed my younger brother to join them for the trip). We rearranged our schedule to accommodate...thank heavens for inspired grandparents. Their one visit for the entire year coincided with our one moment of deepest need. Coincidence? Not a chance.

They arrived on Wednesday, April 21. For a few weeks prior to this time, I had been concerned about Robby. He had been wetting through his diaper most every night, but not wet through by morning, I mean wet through by like midnight. And when I say wet, I mean soaked...bedding, jammies, everything. At first I thought we were just giving him too much to drink before bed. When we started to try to cut back his fluids, that's when I really started to notice how thirsty he was for much of the day. By the time Wednesday morning rolled around, I had decided I should look into it. He was also acting so fussy that I thought something might be wrong. I called the nurse, made an appointment for Wednesday evening (a few hours before my parents would arrive). Wouldn't you know it, Robby started to perk up, drink less, eat more, and act more normally. I canceled the appointment...something I regret at first, but now looking back, I'm a little relieved.

On the one hand, I feel so badly that my baby had to spend two more miserable days being so terribly sick. But on the other hand, we had two more days of freedom before the bomb was dropped on us...and they were two really good days.
We had made arrangements to once again go to the Great Wolf Lodge for Thursday night. It was a blast. Tyler was tall enough to ride everything, and ride everything he did! We are so glad we had a few carefree and fun days with Grandma, Grandpa and uncle Spencer before we put them to work with helping our family during our crisis. Robby was okay, but just not himself. He enjoyed splashing in the kiddie pool a bit, but mostly he was irritable, tired, and cranky...and he drank as much pool water as he could get away with. That night at the hotel, he barely slept. In fact, John headed back home at three in the morning with him to see if he would get some better sleep. We figured he slept a total of 4 hours for the night. At this point, I realized something was up. I knew the symptoms of Diabetes, but I made an appointment with his pediatrician, praying that she would prove me wrong.

I got in to the pediatrician by 4:00 on Friday. He tested with high blood sugar, sugar in his urine, and ketones in his urine as well. I was devastated and had a good cry right then and there with the pediatrician. She gave me some paperwork and told me to go directly to the children's hospital. John met me at home, my parents and brother stayed with Tyler, and we headed off to the hospital.

Robby was dehydrated (yes, even with all the pool water, but I'll spare you the science), had high blood sugar, and moderate amounts of ketones (a bad thing for diabetics). He fought every doctor and nurse and screamed the entire time they worked on getting his IV put in, but then dropped, and I do mean dropped, off to sleep. He was exhausted. I'll never forget his chocolate brown eyes focused on me while he was screaming during the IV insertion. It was as if he was begging me to stop it all...and I couldn't do a thing. Worst moment of my life.

Lucky for us, we actually caught his illness quite early, and he was fairly quick to stabilize. We stayed at the hospital for three days and two nights. Most of that was not just to stabilize Robby, but to begin our education. I was beyond grateful that my parents and brother were in town to stay with Tyler and to provide lots of moral support. They were a tremendous help!

We've been home and on our own now for almost 5 days. I'll have another post soon about how life is for us these days, but suffice it to say, we are learning lots and making some major adjustments. Robby is healthy and doing well. We are so grateful for all of the prayers that have sustained us during this time and that have helped bring healing to his little body. Thank you all.
Here's where Robby spent much of his hospital stay. He really did quite well, given the circumstances...and even won over the hearts of a few of the nurses.
His favorite was cruising the halls in his new set of wheels...I wish I had a few pictures of him with the wagon, though. He spent an hour and a half pushing that thing around.




On Saturday afternoon we broke him out of his cell and headed outside for some much needed fresh air. His face lit up the minute we hit the doors.

...and then we had to recover from all the excitement.

Man is this boy ever cute! Sure am glad he's feeling much better.

Tuesday, April 6, 2010

Like Father Like Son

For as long as I've known John this is how he sits when he's working on a project. I've always thought it was a weird position and very uncomfortable for me to try. Anyway, I think it's totally funny that Tyler sits the same way when he's working on something. I was finally able to catch them both on film last week while they were working on some Lego's together.
Pretty cute!

Trucks



This is so Robby- sitting on his truck with a truck in each hand.

Monday, April 5, 2010

Egg Hunt

Last weekend our neighborhood had it's annual Easter egg hunt. I'm still the social committee chairman, so the day was actually more work than fun, but not to worry, my boys were ever so helpful:
I did manage to slip away for a few minutes so that I could enjoy some of the fun with my fam. Here they are waiting for the games to begin.

Tyler was incredibly fun to watch as he frantically darted around the field collecting eggs.

Robby caught on quickly to the idea and was so cute with a big grin on his face each time he collected a new egg in his basket. He had a great time until the Easter Bunny showed up. You can't tell in the picture, but he's shaking with fright.
He was better when the bunny backed off a few paces and stopped waving at him. My cute husband was super supportive and very helpful. He even made a little lunch for all of us to share. He also let Tyler decorate everyone with Easter stickers.
Fun day!

Saturday, March 20, 2010

Other Spring Break Fun


Spring break wasn't really a big deal since Tyler is only in preschool, but since John was also out of school for the week, we decided we'd better at least take advantage of the extra spare time.

The boys finished the sand box and made a number of trips to Home Depot for bags of sand. I think everyone is pleased with how it turned out!
We went for a bike ride to Sonic only to discover that both mom and dad had left their wallets at home! We were only slightly disappointed that there were no cherry limeades to quench our thirst. We then decided to extend our bike ride and ride over to another park that we don't get to visit very often. Tyler loves riding on the tag-along with John (he talks John's ear off the entire way), and Robby, well, Robby was lulled to sleep being pulled behind my bike. I'm just glad we all had a good time and no one got a flat tire!
When we asked Tyler what one activity he wanted to do during spring break, he enthusiastically let us know that he wanted to go to Chuck-E-Cheese where a kid can be a kid. Easy enough!

Here he is playing his favorite airplane game. I love that he adds his own sound effects

Robby had a great time too. I loved watching his face when he saw this truck and discovered that he could actually ride in it!

On Friday we headed to the park to play on the playground, collect sticks, kick the soccer ball across the fields, and throw bread at the ducks...um, I mean feed the ducks. John and Tyler also decided to play "get the soccer ball stuck in the drainage pipe." They rolled it back and forth several times until it lost momentum half way through. Ty decided he would craw in and get it. Robby thought that was hilarious...I didn't agree. We decided to throw a tennis ball at it to dislodge it instead.

Fun moments, great weather, happy memories.

Lucky Boys and fun traditions

This past week was spring break. In an attempt to create some fun without actually going anywhere or spending any money, we invited some friends over. My friend Brooke just had baby #5, so we thought three of the older brothers would enjoy a play date at the park.

We packed lunches and spent some time enjoying the beautiful weather. The boys were thrilled to discover that they had the basketball courts and the tennis courts all to themselves! I; however, learned that if you have five boys at the courts, you need five balls (Robby included). Thank heavens we live a 30 second walk from the park, so we headed back home and scrounged around for a few extra balls. Whew!

Tyler had a great time with so many playmates and I was grateful for the free entertainment! As a bonus, it was St. Patrick's Day, so I couldn't resist breaking out some fun things from my teaching days and we celebrated in true leprechaun style! This picture still cracks me up...but maybe not as much as having 25 of these little cuties and parading them up and down the halls of the school!

(as another fun St. Patrick's Day activity, John took Tyler to the store and came home with Lucky Charms for dessert. We thought it was hilarious that even though Robby had never tasted the stuff, he instinctively knew that the sugary, colorful pieces were way better than the brown crunchy pieces. His high chair tray was left with all the cereal pieces and he kept begging for more.)

On a side note, here is another activity from my teaching days that we have incorporated into our family traditions. It's a Valentine's activity. We did this both last year and this year enjoyed it so much we plan to do it every year. When I was teaching, I gave each student a sealed envelope with a letter and a heart that was cut into five pieces. I gave the instructions that the students were not to open the letter and asked the parents to keep the activity secret. I asked them to write something that they love about their child or something that their child does to make them proud on each piece of the heart. During the week of Valentine's Day I would read one of the pieces of the heart for every child and then had them glue it into place. I loved how their faces beamed when I read each of their pieces. It was one of my very favorite activities as a teacher. It seemed only natural to adapt this activity for our family. Each night we would take turns writing something special about each member of our family. By the end of the week we each had a very special valentine.

Tuesday, March 2, 2010

Cowtown

Saturday I ran the Cowtown half marathon. It was altogether a great day. The weather was glorious (sunny and 45 degrees), the crowds were enthusiastic (20,000 participants), the route was unique (winding through downtown Fort Worth and some neighboring communities), and the goodie bags at the end had doughnuts...does it get any better than that?

Yes. Yes it does. The only thing that could top all of that is running this race with a great friend by my side. This was my third half marathon, but it was the first time I have ever trained and run the race with a friend. I'll never go back to running alone. Running this race with my friend Jen is something I will cherish for a lifetime. I couldn't have done it without you, Lady!!!
My time wasn't impressive, but it was decent. But to be quite honest, it's never been about beating the clock. I love this sport. I love the feel of the wind on my face, the pavement under my feet, the rhythm of my pace- I love it all.
Crossing the finish line was exhilarating, but for a couple of different reasons. Two months ago, the tendinitis in my knee flared up so badly that I couldn't run more than three miles. I was devastated, and was uncertain if I would be able to complete my goal. Lucky for me, my home teacher is an occupational therapist. His visits looked more like PT (physical therapy) than HT (home teaching). He taught me some new stretches and provided me with a few tools to help out. Each run I had a strict regimen of warming up, stretching, and rolling tight muscles both before and after the run. So while I know that running 13.1 miles isn't that big of a deal, I feel like I had to fight for it. So when I crossed that finish line, I felt like I had won the fight.
The other reason why crossing the finish line was so exhilarating was because I was reminded of how blessed I am to have such a dear friend in my life. Training with Jen has been therapeutic. For the last 4 months I got to spend more than a few hours each week talking about anything and everything (literally). At least three times a week, I got to share ideas, vent frustrations, discuss my worries, reveal my aspirations, and laugh, laugh, laugh during each of our runs. Those moments have kept me happy, sane, and thriving.
The last reason why crossing the finish line was a thrill was because I shared this experience with so many people I love. My cute boys were at the finish line the cheer for me. I was so happy to see their sweet, little faces light up when they saw me. Tyler lit up like a light bulb-so cute!
And they even had some awesome signs to hold up for us!I was so proud of how patient they were waiting for us to come across the finish line. Seriously, how cute are these two waiting for their mommas?!?

I'm so proud of several other friends who finished various races that day. We were lucky enough to find Tiffany (who also ran the half marathon and who posted a very impressive time, I might add). I only wish I could have seen a few of you others so that I could give you a big hug and tell you how proud I am of you for reaching your goals! You impress and inspire me.
*************************************************************************************

And Jen, this last part is for you.

Remember that one time when...
*we told that dude we were going to kick his dog?
*we ran 12 miles in a foot of snow, and spent most of the run trying to figure out how we were going to get 12 miles in without running on sidewalks, major roads, or connecting trails?
*we tried many times (unsuccessfully) to run and laugh at the same time?
*we both almost peed our pants (okay, maybe one of us did a little) when that huge dog tried to attack us from under the fence?
*we wondered what happened to the lights on Shiver (did those people all stop paying their taxes)?
*we were afraid we were going to get passed by the old lady on Heritage wearing hot pink sweat pants?
*we wondered which article of clothing would be easiest to sacrifice if needs be (a glove. For sure a glove)?
*we talked extensively about our favorite Gu flavors as if it was a four course meal?
*we thought you were hilarious at mile 7?

...Yeah, that was awesome!
Thanks for lots of good times and for pushing me to be better.